I knew that it had been a long time since we’d been to see Devlin’s specialist, but it wasn’t until I heard Tessa, the Nurse Practitioner telling us that our last appointment had been in 2001 that I realized just how long ago it had been. Yes, I know that some of you are thinking to yourselves that I must be a bad parent, and how can I argue when I’m feeling pretty crappy about it to.
I look back at that time in our lives and remember what it had been like and I wonder how we survived, but then I look at us now and realize that no matter how hard we’ve struggled and no matter what advances we’ve made, really we aren’t that far from where we were back then, but that’s another entry altogether. This entry is about Devlin and his trip to see Dr. Milo-Manson.
So we wheel into the Rehab Hospital and sign in, the receptionist had to sign in one child ahead of us and as the Dad and her were doing the paperwork, the little boy happily plodded over to a chair behind the receptionist desk, and smiled and looked up at her. She smiled back and said “Now you’re in for it. That’s the Big Bosses seat, which means you’re in charge now. So what do we have to do today?” at which point he gav her her a beautiful grin and said “Eat cake!”.
Dad gave a chuckle, called him back out from behind reception and the two of them made their way to the waiting area.
That’s when I stepped up and handed the receptionist the letter and asked her if we were in the right clinic office, she gave me a small smile and said yes. We signed in and made our way to the waiting area where we discovered, much to Devlin’s delight, a giant fish tank with all his favorite fish from Finding Nemo swimming around in it. He sat there and watched those fish flipper their way around that tank, while I pointed at them and asked him who was who. Hubby and I actually got into a debate over whether one of the fish was a clown fish or something else. We were so into the fish tank that we almost missed the nurse Megan calling out Dev’s name, but hear it we did and that meant leaving the fish tank and heading into the clinic. I’m sure Dev would have preferred to just hang at that tank all day.
Once in the clinic we were introduced to Tessa, the NP (Nurse Practitioner) who apologized for us getting lost and nobody getting back in contact with us when I’d called and asked for it. She sat down with us and took the full family history, asked for details in our lives that she apologized for, saying that maybe it was too personal. I didn’t think asking about any hospitalization was personal, but who knows. And after going to family therapy with the kids and all the bruhaha that went with that, those questions were a piece of sliced cake, speaking of cake, I wish I had some right now! Oh well, back to the story.
We spent a good amount of time in the exam room with Tessa and then she went and got Dr. Milo-Manson who came in and looked over the file and was shocked that Dev wasn’t being seen by a therapist anymore, and she’s decided that we need to get Dev in for some testing of his eyes and ears, he needs to go see their dentist because they’re more equipped to deal with special needs kids and he’ll need some X-Rays and a possible MRI in the future. He also needs to go to Ortho to get his legs examined and see what can be done about the tightness in his one leg. Dr. Milo-Manson didn’t know if anything could be done, since that’s not her area of expertise, which is why she’s going to refer us to that department because the Doctors there would know better.
Dr. Milo-Manson is also going to write a letter to the school to help with getting Devlin his own EA, at the least for feedings and if the doctor has her way, for everything else as well.
When we were finished there I felt a little more than relieved that we were back into their system and knowing that Dev will now get what he needs, and hopefully he’ll get a little therapy again as well as getting some better care at school (but that’s another story). I’m a little sad when I think about all those upcoming appointments and how hectic my life will be once more, but it’s all for the better of Devlin and he’s worth a little organized chaos in my life.